Members
PKDeep Survey
PKDeep is the pilot implementation for Pyruvate Kinase Deficiency (PKD) of the Rare Anaemias Disorders European Epidemiological Platform (RADEEP).
As starting point, by answering this survey you will be contributing to the European mapping of diagnosis services offered and to ascertain the number of PKD patients with genetic diagnosis.
Download the entire questionnaire here in order to check before start the on-line survey the information that will be requested Download questionnaire
Data marked with * will be published in the ERN-Eurobloodnet website (under your permission) to create an accessible inventory of centers, experts and diagnostic services on PKD across Europe.